[New post] Guest Post From Drugwatch About Joint Health.

Joint Health with Nutrition and Exercise Nutrition and exercise are powerful protectors of long-term mobility, and can be a valuable focus for those concerned with hip health. This holds true not just for people seeking to prevent future hip problems, but also for those who have had to undergo hip replacement. That is because the healing process and the restoration of mobility rely upon both, as does overall joint health. Taking this approach is particularly important for people dealing with additional surgeries and complications resulting from recalled metal-on-metal hip replacement systems, like the Stryker Rejuvenate hip replacement implant. Tissue Repair, Joint Health and Bone Growth Nutrition is essential to the body’s ability to restore damaged tissue, a complication associated with the metal-on-metal hip replacement types, and promote joint health. Vitamin C and protein are heavily involved in creating and maintaining the actual structure of connective tissues and cartilage, according to Oregon State University’s Linus Pauling Institute Micronutrient Information Center. Omega-3 Fatty Acids are important to joint health, including reducing inflammation. Calcium, phosphorous, copper, magnesium, and Vitamin D are vital to bone development and density. A diet rich in whole foods is the best way to achieve optimum nutrition because there are numerous phytochemicals that cannot yet be pharmaceutically copied. These nutrients often work in partnership with other vitamins and minerals, boosting their ability to perform their tasks within the body. However, complementing the daily diet with carefully selected nutritional supplements can be a practical means of being sure that nutritional requirements for achieving health goals are met. Achieving and Maintaining a Healthy Weight Excess weight is bad for hip health and stresses joints more than they need to be. Keeping weight under control can reduce joint and hip pain and perhaps even help to avoid surgical intervention. Being overweight or obese can have an adverse effect on restoring mobility after hip replacement surgery, slowing the process significantly. Nutrition and exercise is the best way to achieve weight goals and promote long term health. Range of Motion Carefully performed, targeted exercise can promote joint health by increasing and preserving flexibility, according to the University of Maryland Medical Center. Exercises geared towards range of motion improvement are done in a slow, smooth, controlled fashion. Sharp, jerky motions can cause damage, and should be avoided. Eating with joint health in mind is important, as well. Vitamin C aids in collagen production. Collagen is essential to the function and strength of connective tissues and joints. Always consult a health care provider before making significant changes to the physical routine, especially after surgery or if dealing with a complex hip health issue. Lifestyle Makes a Measurable Difference Nutrition and exercise are two lifestyle areas that have the potential to make a major difference in overall mobility and well-being. They can work to protect against serious hip and joint problems by eliminating two primary factors in their severity – being overweight or obese and the sedentary lifestyle. Clinical research has demonstrated that making improvements in these two areas can have a positive impact on healing after surgery and on the restoration of mobility.   Elizabeth Carrollton writes about defective medical devices and dangerous drugs for Drugwatch.com.

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[NEW POST] FRUSTRATED!!!

It’s been 7 weeks this week since i started the new Rituximb infusion and with great FRUSTRATION i can say that it is not working as i have had no change in pain or how i feel if anything it’s worse  my pain level has been between 7-10 and more than 6 joints are agony to touch and I’m eating pain meds like lollies, Twice a day i take 1x Tramadol 200mg Slow Release and for breakthrough pain i would take between 6-8 Tramadol 50mg and it would only just take the edge off. Had to call my Rheumy in October to let them know how I’m doing, so told them there is no change and they said there is nothing they can do until they see me  December 19th.It’s all starting to get a bit much so off to my Gp yesterday to sort something out, he has taken me off all Tramadol and put me on a high dose pain patch called Norspan 7 day transdermal patch and delivers 20 mircograms per hour for 7 days and for breakthrough pain he has started me on Temgesic which has to dissolve under my tounge  it gives me on 0.2mg, he said since i have been on the Tramadol since i was diagnosed 4 years a go it not going to be a pretty change over to new pain med and i may suffer withdrawals and will take a few days for the new meds to help. In the car Sam and i chatting about my Rheumy who wants to retire and told the hospital when he was going to retire at the end of next year and the hospital have done nothing to  bring in another Rheumy, and because we are classed as regional we only get one Rheumy and it’s 6 months between visits so I’m thinking about going private next year to Brisbane, Melbourne or Sydney where you see regularly and they deal with your pain as well because at the moment i see gp for pain and Rheumy for  RA , my gp wants me to come off one of the RA meds Methotrexate which is a chemo and a basic RA med and not sure if i want to do that without my Rheumy knowing. I ended up having a break down  in the car crying and sobbing because I’m in pain ALL the time I’m exhausted when i wake up, I’m not sleeping well and I’m FRUSTRATED that my stupid body is not responding to treatment, and FRUSTRATED because i don’t see my Rheumy often and I’m FRUSTRATED because I’m not living life I’m just existing. Sam called my Rheumy and said they have to see me before December  because I’m shit and have gone backwards again so i see them next Wednesday 24th. Sam said when i see them to not put my front on let them see Me and that I’m not coping, Sam said the can see that I’m in pain and my joints are swollen but i don’t show them how much it affects me, i tell them that I’m in a lot of pain and I’m shit but i don’t show my emotions or that I’m getting depressed as Sam says i have my front/wall up and they think emotionally and mentally coping, which normally i am coping but  i think this treatment not working was the straw that broke the camel’s back.

At 5pm last night i put my first pain patch on and at 9pm i took the new breakthrough med with in an hour of having it i got a headache and pain was having a party in my body and it didn’t help that i took my anti depressent which helps me sleep later than i normally do so couldn’t go to sleep and I’m sure an elephant was siting on my chest i was still wide awake at 2:30am i finally went to sleep not sure what time but it was a restless sleep tossing and turning, i woke up at 9am with a nasty headache and ALL joints aching/throbbing and that bloody elephant is still sitting on my chest and i feel like i have run a marathon and gone a few rounds with Mike Tyson. Time for more pain meds i will updated on Wednesday after the Rheumy visit.

Hope your all well! Until next time take care! :-)

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[NEW POST] Second round of Rituximb.

Yesterday was my second infusion and i was having a very bad RA day every joint in my body was aching and chest was giving me a hard time had sharp pain and felt like an elephant was sitting on my chest. 3 hours in had to stop the infusion i was getting massive pain in my mid and upper back which i don’t normally get so they run the saline for half hour then started rituximb again, the pain stayed and still have it now they don’t think it was from rituximb  they think it could be more RA related so just keeping an eye on it. To give you an idea how bad my RA was yesterday  i had 700mg of tramadol which breaks down to 6x 50mg tramadol and 2x 200mg tramadol and 8x panadol and I’m not much better today. I have felt no change in my joints, pain or fatigue as yet I’m hoping it starts to kick in soon, they say it takes a few months for the rituximb to kill off your white blood cells. This was my last infusion now for 24 weeks then it starts again having a infusion then 2 weeks later having another one. I will keep you all posted on how it’s goes over the next 24 weeks. I don’t see my Rheumy now till Dec 19, but have to call in Oct to let them know how it’s going.

Hope all my readers are well!

Until next time take care :-)

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UPDATED [New Post] First Rituximab infusion.

HOW MY INFUSION IS DONE IS BY AUSTRALIAN MEDICAL STANDARDS!!!!! AND AS FOR OTHER COUNTRY’S STANDARDS I CAN NOT COMMENT ON!!!!

On Tuesday 4th September i started my new biologic treatment, we got there at 08:20 and they hooked me up to the infusion machine thing, before they started the Rituximab i had to have a100mg of steroids and wait for half an hour. The steroids are given because you can have reactions while receiving the Rituximab, the steroids make your body except the Rituximab. After the half hour they started the Rituximab and it is started at the lowest rate and then at every half hour if I’m doing ok they speed it up a little until the reach the maximum rate. 2 hours in i started having a reaction my ears (inside) and throat (back) started at getting very itchy so the infusion had to stop for half an hour and just had saline running through, after half an hour the itching went and they started up the Rituximab again and had no further itching. 3 hours in from my elbows to my finger tips on both arms and my knees started going really tight and pins and needles i asked the nurse and she said it was because i am sitting for so long and the only time i move is to go to the toilet. Infusion finished at 16:30 was a very long day.
When i woke up the next day the muscle tightness and pins and needles had gone but i have a very red face which is a side effect also i am super fatigued and just felt flat. Today 6th Sept I’m still feeling very flat and have super fatigue and a red face,  my fatigue normally is a full on  but this is 3x as bad. Have no change in pain as yet  it’s still powering on! The nurse told us on Tuesday that for the next week i am TOXIC  and if i vomit, pee, or poo  my self that nobody can clean it up but me because it can make them very very sick, when the nurse hung the bag up it was in black plastic because it is light sensitive and she had full protective clothes on with gloves and glasses , gives you a little idea hot toxic it is.
Will keep you up to date with how it’s going.
Untill next time take care :-)

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[NEW POST] They are pulling out the big guns for my new meds!

Seen the Rheumatologist today, i have been on Enbrel  for the past 3 months and the past 3 months have been really really crap! So one of my inflammation markers called ERS was 70 now when the very first time i seen the Rheumatologist my ERS was 50 your ERS should be under 5, so it’s indicating that my disease is getting worse not better, so now they are pulling out the big guns. My new med will now be an infusion i will have  1 infusion and then  will have another 2 weeks later  and then 26 weeks later i will do the same, the infusion will be done at the oncology centre in Cairns and will take 5-6 hours. They use this new med RITUXIMAB for the treatment of lymphoma as well.
As i said before the last 3 months have been really crap, i have had a few infections and have been in a lot of pain and to top it off the disease has now moved to my elbows and wrists so now now have Rheumatoid  Arthritis (RA) in every joint in my body. I don’t want to get my hopes up but i hope the new med works, i am fast running out of options . I have a put more info on Rituximab in my treatment page, just scroll down.
Anyhoo i hope all my readers are happy and well!
Until next time take care and have a great weekend!! :-)

[New Post] It’s getting harder and harder to stay positive!

Well the last few months have been crap to say the least, change of RA meds, RA flare, a few infections then the menopause bomb dropped, change of pain meds its been full on. It’s getting more apparent that it’s not help as much as we hoped and now I’m starting to get a reactions at the injection sites,  My wrist have started aching and throbbing which indicates I have RA in them now too,  so Enbrel not doing what it’s ment to
so now I have RA from head to toe,  we have changed my base line pain meds from Tramadol150mg SR to Tramadol 200mg SR plus I still take my breakthrough pain med Tramadol 50mg.

Last night I started what feels like my yearly meltdown, I sit in my house jail watching life pass me by when at 31 I should be out living!  I see friends enjoying life and traveling and doing other things but im just existing not living and it gets me very down,  I’m afraid by the time I’m able to travel I will be to old to enjoy it. Yes I know I should be positive but I tell you it gets harder to stay positive when med after med is not helping and im going backwards. At this stage there is no light at the end of the tunnel, definitely doesn’t help with early menopause thrown into the mix, the mood swings are a bitch!

My next Rheumy Appointment is the 16th of this month,  I will have a blood test a couple days before to check inflammation markers and to check liver and kidneys to make sure they are coping with the nasty meds.  Until next time take care.

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Menopause

At first it didn’t bother that I have started menopause, 1) because I didn’t want kids and 2) I am happy that every month my flair’s will be less nasty,  but it seems that the flushes are getting more intense my whole body goes hot, my face goes red and hot to touch and I sweat like a pig for 15-20 mins while the flush is in action,  but I also get cold and goose bumps at the same time it’s bloody full on. The mood swings are just as full on I feel restless, angry and irritable,  then I feel down, sad and why me,  then I am back to myself,  it’s driving me nuts! Poor Sam she deserves a medal!
Until next time take care.  :)

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